by Jess Brooklyn | Dec 15, 2023 | Uncategorised
Welcome Welcome to the RVA Education: Funding Rare Disease Organisations course. Designed for leaders of small rare disease organisations, this Funding Rare Disease Organisation series provides a better understanding of funding sources and will cover grant...
by Jess Brooklyn | Jun 26, 2023 | Uncategorised
Welcome Rare Voices Australia is pleased to present Quiip’s Facebook Groups and Social Media Risk Training for Rare Disease Organisations. Social media can be a powerful tool for rare disease groups/organisations. It gives small, geographically dispersed rare...
by RVAcommunications | Nov 28, 2022 | Uncategorised
IntroductionMaking a submission to government inquiries and consultations is an important way that rare disease organisations can raise issues of concern and advocate directly to government on behalf of their communities. This short course has been developed by...
by RVAcommunications | Aug 4, 2021 | Uncategorised
Introduction During these uncertain and challenging times due to COVID-19, effective advocacy is more important than ever. With so many competing issues and voices, it’s essential that the rare disease community make their voices heard. With this in mind, Rare Voices...
by RVAcommunications | May 5, 2021 | Uncategorised
Introduction Illuminating landmarks can be a powerful way to mark awareness days such as Rare Disease Day. Illumination activities showcase a united front and shine a light on rare diseases as a collective (Rare Disease Day) or for a specific rare disease....
