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Growing Up with Rare Disease Disability: The Realities for Siblings and Practical Approaches for Families and Carers
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Growing Up with Rare Disease Disability: The Realities for Siblings and Practical Approaches for Families and Carers

Growing Up with Rare Disease Disability: The Realities for Siblings and Practical Approaches for Families and Carers

About This Course This program contains guides and information to help rare disease groups/organisations to facilitate Growing Up with [...]

Growing Up with Rare Disease Disability: The Realities for Siblings and Practical Approaches for Families and Carers2026-05-19T09:59:40+10:00

Accessing Emerging Therapies
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Accessing Emerging Therapies

Accessing Emerging Therapies

About This Course With many new therapies for rare diseases [...]

Accessing Emerging Therapies2025-12-18T11:39:51+11:00

Funding Rare Disease Organisations
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Funding Rare Disease Organisations

Funding Rare Disease Organisations

About This Course This course covers: Different types of organisational [...]

Funding Rare Disease Organisations2025-06-13T10:34:16+10:00

Social Media Risk Training
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Social Media Risk Training

Social Media Risk Training

About This Course This course, presented by Quiip, recognises the [...]

Social Media Risk Training2025-06-13T10:38:55+10:00

Writing Effective Government Submissions
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Writing Effective Government Submissions

Writing Effective Government Submissions

About This Course This course is ideal for rare disease [...]

Writing Effective Government Submissions2025-12-18T11:22:46+11:00

Advocacy and the National Strategic Action Plan for Rare Diseases
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Advocacy and the National Strategic Action Plan for Rare Diseases

Advocacy and the National Strategic Action Plan for Rare Diseases

About This Course The content is self-paced so complete the [...]

Advocacy and the National Strategic Action Plan for Rare Diseases2025-06-13T09:45:01+10:00

Updated: 28 July, 2026

DISCLAIMER: The information on this website is intended for educational purposes only and does not replace professional advice.

Rare diseases typically display a high level of symptom complexity and variability. Individuals diagnosed with the same rare disease may be impacted differently and each person’s experience is unique.  Please seek support from qualified healthcare professionals to learn more about the most suitable care and support options for you. See our Terms of Use for more information.

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