RVA Education: Writing Effective Government Submissions – A Guide for Rare Disease Organisations

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Introduction

Making a submission to government inquiries and consultations is an important way that rare disease organisations can raise issues of concern and advocate directly to government on behalf of their communities. This short course has been developed by government relations, advocacy and health communications specialist, Tania Jayesuria.

In line with Action 2.1.4 of the National Strategic Action Plan for Rare Diseases, this course contributes to developing the capacity of rare disease organisations to represent and advocate for people living with a rare disease and their families.

This course is ideal for:

  • Rare disease organisation leaders interested in lodging submissions to government inquiries and consultations
  • People living with a rare disease who are interested in lodging submissions and no formal support group exists

After completing this course, you will:

  • Have a better understanding of best practice tips, strategies and tools for writing impactful submissions at the Federal/Commonwealth Government level

Please note: this course is available to RVA Partners only. Click here for more information about becoming an RVA Partner.