RVA Education: Amplifying Advocacy Using the National Strategic Action Plan for Rare Diseases

Introduction

During these uncertain and challenging times due to COVID-19, effective advocacy is more important than ever. With so many competing issues and voices, it’s essential that the rare disease community make their voices heard.

With this in mind, Rare Voices Australia (RVA) has developed this online learning resource to assist you in amplifying your rare disease advocacy using the National Strategic Action Plan for Rare Diseases (the Action Plan).

The Action Plan was launched in February 2020 by the Minister for Health and Aged Care with bipartisan support. The Action Plan was developed ‘by the rare disease sector, for the rare disease sector’ and is a powerful tool that you can use to amplify your advocacy.

This learning resource provides information, case studies and examples to highlight the power of the Action Plan in advocacy.

Once you’ve completed the course, you will:

• Understand the context and background to the development of the Action Plan.
• Recognise the key features of the Action Plan that amplify advocacy.
• Be able to use the Action Plan to amplify your advocacy.

The content is self-paced so complete the modules when it best suits you. You can test your understanding throughout and upon completion of the course, you will receive a certificate.

You will need to complete Module 1 before moving onto Module 2. After reading and watching all of the content, you’ll be asked to test your knowledge in a short quiz.