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The rare disease landscape is constantly changing. Rapid technological advances are leading to increased knowledge and complexity increases uncertainly. Rare Voices Australia’s (RVA) Online Education Portal is a living resource that is continually growing and being updated to keep up with the ever-evolving landscape of rare disease healthcare, policy and research.

The information, links and resources on RVA’s Online Education Portal are curated via a methodical and purposeful process. This process enables the sharing of information that is current, up-to-date and active, and from credible sources backed by well-respected experts or governments.

All rare disease stakeholders are invited to help maintain the quality and accuracy of information RVA provides. If you would like to contribute content or suggest a revision for existing content, please fill out the form below.

DISCLAIMER: The information on RVA’s Online Education Portal is intended for educational purposes only and does not replace professional advice.

Rare diseases typically display a high level of symptom complexity and variability. Individuals diagnosed with the same rare disease may be impacted differently and each person’s experience is unique.  Please seek support from qualified healthcare professionals to learn more about the most suitable care and support options for you.  See our Terms of Use for more information.