
Social Media Risk Training
Course Overview:
Social media can be a powerful tool for rare disease groups/organisations. It gives small, geographically dispersed rare disease communities cost-effective ways to connect, share stories and information, and access practical and social support. This course is designed to assist rare disease groups/organisations to build engaged and thriving social media groups and effectively manage the risks to themselves and others. This training has been customised specifically for RVA Partner groups/organisations by Quiip, specialists in online community building and social media.
About This Course
This course, presented by Quiip, recognises the sensitivity and complexity of the work rare disease groups/organisations engage in. The course covers:
- Building a thriving Facebook group that achieves your group’s/organisation’s key goals.
- Establishing group strategy, rules, roles and processes.
- Understanding your community and member journey.
- Engaging in active community management and moderation.
- Identifying and managing legal, reputational and user risk in online communities.
- Creating an effective moderation team.
- Developing community guidelines, risk matrixes and other process documentation.
- Managing misinformation and medical and health-related risk in online groups.

