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A Guide for Rare Disease Organisation Leaders in Australia

Course Overview:

Starting, leading or contributing to a rare disease organisation is a challenge few of us take on by choice. Circumstances, necessity and a drive to see positive change for Australians living with a rare disease are factors that determine how most rare disease organisation leaders end up in their role. This course is for people looking to start a rare disease organisation and established rare disease organisations.

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About This Course

Rare disease organisations present an exciting but often challenging opportunity to contribute to improving the lives of those affected by rare conditions. Rare disease organisations are an important part of the Australian community. This course is for people looking to start a rare disease organisation and established rare disease organisations.