People living with a rare disease face unique challenges. The complexity and unmet need can be overwhelming for people living with a rare disease, policymakers, clinicians, researchers and industry. Due to limited data and high levels of uncertainty, people are often faced with difficult decisions, incomplete knowledge and unclear pathways.
After completing this course, you will better understand Australia’s rare disease landscape and policy environment.
This course is ideal for:
- People living with a rare disease who are interested in understanding the current policy frameworks that impact Australians living with a rare disease
- Anyone with an interest in the Australian rare disease landscape and policy
- Those wanting to participate in consumer consultation or co-design across a range of rare disease awareness and education projects
Module 1: Introduction to the rare disease sector
Module 2: Overview of Rare Voices Australia
Module 3: The National Strategic Action Plan for Rare Diseases
Module 4: Rare diseases and the Australian healthcare system
Course content is self-paced, so complete the modules in your own time.
You will need to complete Module 1 before moving on to Module 2. After making your way through the content, you’ll be asked to test your knowledge in a short quiz. Once you have successfully completed each quiz, you will receive a certificate that acknowledges your completion of this course.