1.1: Acknowledgements
This companion resource was developed as part of the Rare [...]
This companion resource was developed as part of the Rare [...]
Significant diagnostic delay and misdiagnosis is common for Australians living [...]
Whilst the number of rare and undiagnosed diseases is vast, [...]
Both the challenge of living with a rare disease and [...]
Mental Health First Aid (MHFA) training helps adults in the [...]
RVA and the RArEST Project Rare Voices Australia (RVA) is [...]
The National Strategic Action Plan for Rare Diseases The National [...]
The most widely accepted definition of a rare disease is [...]
References and Further Learning Materials Throughout this resource, we refer [...]
This companion resource assists accredited Mental Health First Aid (MHFA) [...]
Updated: 13 June, 2025
DISCLAIMER: The information on this website is intended for educational purposes only and does not replace professional advice.
Rare diseases typically display a high level of symptom complexity and variability. Individuals diagnosed with the same rare disease may be impacted differently and each person’s experience is unique.  Please seek support from qualified healthcare professionals to learn more about the most suitable care and support options for you. See our Terms of Use for more information.
© 2025 Copyright Rare Voices Australia Ltd.
Privacy Statement |Â Accessibility Statement | Suggestions and Feedback
