Welcome
Rare Voices Australia is pleased to launch the ‘Rare Disease Resources for the Regional, Rural, and Remote Community‘ collection.
This webinar is intended for peak bodies, organisations, and health care professionals who work with the regional, rural, and remote community, RVA’s Partner groups/organisations, and rare disease groups/organisations that wish to engage the regional, rural, and remote community.
Course Contents
This webinar will cover:
- The National Strategic Action Plan for Rare Diseases and Priority Populations.
- Introducing the New ‘Rare Disease Resources for the Regional, Rural, and Remote Community’ Webpage, and the Reasoning and Development Process for the Project.
- Collaboration with Stakeholders.
- Creating the Collection Webpage, Health Literacy and Accessibility.
- Lessons Learned from the Development of This Collection.
- How You Can Help.
